Simone Palazzi

simoneNOME: Simone
COGNOME: Palazzi
ETA’: è nato il 26 aprile 2002
PROVENIENZA: Brembate (BG)

AFFETTO DA: sindrome di West

SITUAZIONE AGGIORNATA:
attualmente sottoposto a cure farmacologiche caratterizzate da altissimi dosaggi, necessita di cure riabilitative intensive per cercare di superare il suo importante deficit motorio e cognitivo; ciò comporta speciali sedute fisioterapiche associate a sedute iperbariche, come da protocollo attualmente applicato esclusivamente negli Stati Uniti, con previsione di costi altissimi.

NOTE SULLA MALATTIA:
la sindrome di West colpisce un bimbo su 150.000; è una forma gravissima di epilessia, caratterizzata da una compresenza di sintomi gravi fra cui spasmi muscolari, forte regressione mentale e tracciato encefalografico anomalo. La forma di tetraparesi spastica associata progressivamente colpisce l’apparato muscolare nella sua totalità.

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